Whats it all about Alfie?

“Mummy, how did our baba get a tube in his belly?” We were struggling to come to terms with what this new diagnoses meant for Nathanael, and what it meant for us as a family. While at the same time trying to hold it together for Alfie and be the ‘perfect’ parents at the same […]

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Can we do this Alone?

“It’s lovely to see a ‘wee’ man like that in the morning” I was as usual a little over sensitive and this comment struck me as unsympathetic as they come, I’m standing with my bald pale baby in the Cancer Centre. Really is it lovely? It was day eight out of twenty at radiotherapy and […]

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Can We Run Away?

After our conversation with our consultant we went home having the success of surgery stolen from us. The next few days we focused on making Alfie feel like he had his family back and making sure Nathanael’s recovery continued. He only had a two-day window to recover before we went back to his weekly chemotherapy […]

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Don’t Take The Light Away

PICU Its short for Paediatric Intensive Care Unit I suppose it should really be short for, ‘your child is fighting for his life’. For many parents to describe it as a nightmare would be insulting and patronising so I won’t go there, but I will tell you that the parents I crossed paths with while […]

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